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Monday, September 30, 2024

AJ: Released From The Hospital


Leaving Boston Children's Hospital

A quick but important update... AJ has been released from the hospital!  He is now staying with some of our friends from New Hampshire for the rest of the week while he continues to recover.  

Since my last update Saturday morning, here are the highlights:

Dr Baird, the surgeon, stopped by and gave us some encouragement regarding AJ's vision problems.  She said it is not uncommon for vision issues to be present when working on this part of the brain due to inflammation and just generally disturbing that area of the brain.  

She would be more concerned if the vision issues persist for 6 weeks and encouraged us to give it some time.  So, that gave us all hope because his vision is definitely messed up right now!  Please continue to pray for a return to perfect vision.  

We are praying for pain relief as well.  The surgical team had 3 clamps attached to AJ's head.  These are the scars from the head stabilizer.  And, of course the scar from cutting his skin, pealing it back and cutting open his skull tends to be painful as well.  Rachel sent a video where the ICU doctor asked him to smile and even that hurt due to the muscles cut on the side of his head that are somehow used in smiling and clenching teeth.  



First time out of bed and sitting...


Working on vision and fine motor skills...


Walking and stairs...


Friends...





The famous apple juice (covered by insurance)...



A momma's love...


On the road to recovery....

Goodbye Rm 735

Prayer requests
1.  Vision returning to normal
2.  Pain reduction
3.  Renewed energy and stamina
4.  Healthy and whole in every way
5.  That God would be glorified in all that is happening

The Moms both said this was their favorite photo...

God bless,

Andrew

22 comments:

  1. Wonderful news!!! Prayers for continued healing!

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  2. This just makes my heart so happy! Thank you Lord!!!

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  3. Thank you Lord! Please continue healing AJ and we thankful for being so near and present in his time of need πŸ™Œ

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  4. So wonderful that he is out so quickly!

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  5. Wonderful news. Continued prayers for A.J.'s complete recovery.

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  6. AJ, keep up the great work! God Bless!

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  7. Fantastic news! We'll continue to pray for full recovery.

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  8. Will continue to pray for total recovery. God loves us and God is a good God. Thank you for all the updates

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  9. Get home soon and get healed up all the way πŸ™πŸΌ. Glad to see you’re bouncing back quickly.

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  10. Praying for YOU AJ……
    SENDING LOTS OF LOVE

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  11. With tears in my eyes, I'm so thankful surgery went well and AJ is on his way to recovery! Sending prayers for continued healing! God's got this!πŸ™πŸΌ❤️

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  12. Such glorious news!!! Continued prayers for AJ's complete recovery. <3

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  13. Such wonderful news! Praise God. Praying for complete healing xx

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  14. Praise God for his recovery! Thanks for sharing. Will continue to pray

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  15. Prayers are being answered so happy AJ is on the road to recovery. Prayers continued for AJ & familyπŸ™πŸ™πŸ«ΆπŸΌ

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  16. Wonderful news! We continue to pray for AJ’s complete healing!

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  17. Thank you so much for the update! I love the hand-holding pic too!

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  18. hallelujah! πŸŒˆπŸ’›

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  19. This is beyond beautiful. Thank you for the update. You are all a phenomenal family❤️πŸ™ŒπŸ™

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  20. AJ has grown up into such a handsome young man. Continued prayers for his full recovery. God is good. πŸ™( from Karen H. St. Francis NICU)

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    Replies
    1. Our favorite NICU nurse from when AJ was born as a tiny 2lb 9 oz, 29 week gestation premie!

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  21. Great news! AJ, we all love you so much! The progress you’ve made in such a short time is extraordinary. Your courage, strength, and faith are inspirational. Thoughts and prayers continue to be with you!

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